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| Leigha (ME) Bicoronal Cranio CVR with FOA surgery performed born 7-22-00 |
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Mommy(born 2/18/1977) and Daddy(born 5/22/1975) Genetist says Daddy probably has slight/undiagnosed Cranio |
| Daddy's Brother Shannon we suspect has undiagnosed cranio. Daddy also has 2 sister's with 5 children between them who appear not to have cranio. |
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| My brother Austen born 12/21/96 doesn't appear to have cranio. |
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| Mommy's family No history of craniofacial incidences as far as we know |
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| My Paternal Grandma Elaine born 1953 non-cranio Has 4 children 2 are suspected to have undiagnosed cranio(my dad and his brother) |
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| Aunt Linda: Born 1957 Diagnosed Cranio Uncorrected (originally told it was crouzon Syndrome...my genetitst dismissed that) |
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| Aunt Linda gave birth to 5 children only one had Cranio(Nathan born 1985 - surgery was done to correct it) as far as 2005 she has 6 grandchildren who show no signs of cranio. Although Nathan has not had any children yet. |
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| My Paternal Great Grandma Dora born 1925 |
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| My Paternal Grandfather Hershal born 1925 |
| Grandpa Hershel and Grandma Dora had 8 kids in total Linda had cranio but 6 other children do not appear to have cranio do thier children/grandchildren appear to have cranio. One son, Carl Max, died as an infant. We now suspect he died as a result of cranio around 1965 (it is thought he had multiple closure ) |
| Great-Great Grandma Hazel (Dora's Mom) Born 1906 Had 6 kids one baby girl is thought to have died as an infant from cranio related causes(1920's) Hazel also had one sister she thinks passed away as an infant from cranio related causes in 1909 |
| MY CRANIO FAMILY TREE |
| As you can see Daddy's family has at least one incident of Cranio in each generation. We only just found out this information after mommy began to research the condition. This is surprising to some but we need to remember that cranio surgery has only been performed since the 1950's and that suture closure has only been defined since the early 1900's. When Nathan was born in 1985 doctor's told his mom(Aunt Linda) that he had Crouzon's syndrome. My genetist has reviewed this information and dismisses Crouzon's Syndrome because my preop pictures do not resemble Crouzon's and blood test did not show the genetic markers for the syndrome. Our blood test did not show any genetic defects on markers known to be associated with craniofacial syndromes. We just wait for further research and know that this might yet be passed down to future children. It is sad that my great grandma and great great grandma have lost children as infants from this condition. Please remember although this is not medically confirmed both my grandma's commented that the babies did have odd shaped heads, did not eat well, and were really fussy. We now know now that these are all warning signs for craniosynostosis. |
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