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SEATTLE LYME BOARD





ABOUT US

Seattle Lyme Board is a website to help local patients,family members,and practitioners connect to Lyme Disease information and resources in and around the Greater Seattle and Puget Sound area. This site also includes information on Other Illnesses that commonly Co-Exist with Lyme Disease.

See our disclaimer.

USE browser BACK button () or BUTTON at bottom right or HOME key to get to TOP of SCREEN.




Join our discussion group for Patients & Caregivers

Yahoo! MESSAGE BOARD

Look for "The Tic"


NOTE:   Privacy Settings can be set to NOT show your email address.

Message Board Currently NOT Being MODERATED




EVENTS

CURRENT EVENTS

December 4-6, 2015
Applied Psycho-Neurobiology (APN) Conference
“Biofeedback Psychokinesiology”


Cracking the code on how to decipher Lyme symptoms and treat them with pure, effective, safe and easy to learn psychological intervention.

By applying these simple methods, healing is often possible where conventional and alternative methods have failed. A gift for all practitioners to incorporate the mind body connection in their modality of practice.



LOCATION:

Redmond Hyatt House
15785 Bear Creek Pkwy, Redmond, WA 98052
(next to Redmond Town Center)
Room Block: single $109
425-497-2000



SCHEDULE:

• Day 1:  Friday 9 am – 12 noon
              (Pre Seminar) - ART for APN Workshop

• Day 1:  Friday 1 pm – 5:30 pm
              APN Seminar

• Day 2:  Saturday 8:30 am – 5:30 pm
              APN Seminar

• Day 2:  Saturday 7 pm – 10 pm
              Family Constellation Seminar

• Day 3:   Sunday 8:30 am – 1 pm
               APN Seminar



NOTES:

ART - Automic Response Testing

Family Constellation - Bert Hellinger's systemic psychology and constellation work




CONTACT & INFORMATION: Click Here

THE CUTTING EDGE of HEALTH and WELLNESS TODAY
VoiceAmerica Weekly RADIO SHOW


<Starting 8-1-2014>

Every FRIDAY at 2:00 PM (PST)

Radio Show Hosts: Dr N, MD & Dr T, MD

The goal is improved quality of life and new hope for those who have been struggling with their health care to date. We will be discussing the entire field of health with special emphasis on Fibromyalgia, Chronic Fatigue, Lyme disease, Mold toxicity and Pain. Tune in to The Cutting Edge of Health and Wellness Today, broadcasting live every Friday at 2 PM Pacific Time on the VoiceAmerica Health and Wellness Channel.





LISTEN LIVE:

VoiceAmerica Health and Wellness Channel

CALL-IN LINE: 1-866-472-5792

Android APP: [VoiceAmerica Radio Network] APP (2.3.3+)
MAC APP Store: [VoiceAmerica Talk Radio Network] APP
Windows Phone APP Store: [NONE as of 8-1-2014]

INFORMATION:

Website & Past Shows

>> NEW <<
Snohomish County LD Support Group Meeting


KICK-OFF MEETING:

DATE: Saturday April 19, 2014

TIME: 1:00 PM

LOCATION: Shen Sanctuary
(NE of Snohomish, WA)

>>>  RSVP <<<  Contact for Details


CONTACT:

Jenny
(206) 434-9870
[email protected]

Sign Up to Message Board to get on email list and future meetings.


Biological Medicine 2014:
Healing Lyme Without Antibiotics


May 2-4, 2014
Bellevue Hyatt Regency
900 Bellevue Way
Bellevue, WA
425-462-1234



• Day 1:  Friday 1 pm – 6 pm

• Day 2:  Saturday 9 am – 5:30 pm
              Lyme Lecture: 7 pm – 10:00 pm (patients welcome)
              (Sat. evening demo's & lecture open to patients)

• Day 3:   Sunday 9am – 1 pm



LYME PATIENTS:

  • welcome to register for PART or the FULL event

  • Saturday Night LYME LECTURE:
    $75.00 ea. or $100.00 for 2 registering together




CONTACT & INFORMATION: Click Here

23andMe.org & GeneticGenie.org
Affordable Methylation Pathway Analysis Testing

POOR METHYLATION = POOR DETOXING = POOR RECOVERY

Some LD patients with Genetic Mutations called SNP's or Single Nucleotide Polymorphism's are predisposed to being poor detoxer's. This has impeded the progress of some LD patients from getting better.

23andMe received more than $1/2 Million Dollars in Grants from the NIH and has drastically reduced prices for SNP testing.

23andMe has paired with GeneticGenie to generate a "Methylation Analysis" for patients.

With a Methylation Analysis in hand patients can go to a doctor specializing in advising clients about how to use specific supplements in specific quantities to upregulate the methyaltion cycle to function normally.

WARNING: The methylation cycle is a basic cellular process that occurs in every cell on our body. Upregulating the cycle should only be done in the care of a licensed doctor or professional because of its significant affects on the body.


NOTE: The following GENES are NOT TESTED FOR whereas other LABS are TESTING for these.

VDR Fok-I
MTRR S257T
BHMT-01
SUOX S370S
NOS3 D298E


> SEE TESTS

LINKS:

GENETIC TESTING

- 23andMe.org - $99 TEST - Approx 1 Million Genes Tested


GENETIC TESTING RESULTS

- KnowYourGenetics.com - FREE RESULTS, 30 Genes
  * Sample Report

- GeneticGenie.org - $99 RESULTS now FREE - 25 Genes
  * Sample Report

- Sterling's APP - $20, Approx 300 Genes
  * Sample Report

*** To learn more about the Methylation Cycle see the panel below. ***


MTHFR+ and YOU - Teleconference
Gene Mutations & Chronic Illness Explained

MEETING DATES & TIME:

Started January 22, 2013
(On-Going) - Tuesdays - 5:00 pm (PST)

COST: No Cost

CLICK here for Call-In NUMBER and CODE to join Teleconference or get on Patricia Stenzel's email list.



Find out how "Gene Mutations" like "C677T and A1298C" can have dramatic impacts on a persons well being especially those suffering with chronic illnesses.


MUTATIONGENOTYPEACTION
C677T/C677THomozygousGenetic counseling
A1298C/A1298CHomozygousGenetic Counseling
C677T/A1298CCompound HeterozygousGenetic counseling
C677THeterozygousGet Help
A1298CHeterozygousGet Help
** Listed from WORST to BEST from TOP to BOTTOM


Specialized LABS are NOW testing for more MUTATIONS that play a vital role in Chronic Illness patients. See TESTS for LABS performing these tests.
Additional Mutations
COMT V158M
COMT H62H
COMT 61
VDR Taq TT T
VDR Fok Ff
MAO A R297R
ACAT 1-02
MTHFR C677T
MTHFR 3
MTHFR A1298C
MTR A2756G
MTRR A66G
MTRR H595Y
MTRR K350A
MTRR R415T
MTRR S257T
MTRR 11
BHMT 1
BHMT 2
BHMT 4
BHMT 8
AHCY 1
AHCY 2
AHCY 19
CBS C699T
CBS A360A
CBS N212N
SUOX S370S
SHMT C1420T
NOS D298E

RESEARCH & ARTICLES:

•  MTHFR Simple Explanation     (Detailed Version)
•  Treatment & Results Article
•  MTHFR.net  (Great Website for Detailed Info)
•  MTHFR.net - C677T Mutation Basic Protocol
•  HeartFixer.com - In Depth MTHFR Explanation
•  Rich Von Konynenburg Ph.D - Articles & Video's

Dr Y Research & Information

•  Methylation Pathway Analysis Explained
•  BOOK: Âutism Pathwâys to Recovery
     Ch1   Ch2   Ch3   Ch4   Ch5   Ch6   Ch7   Ch8   Ch9  
•  CASE Studies & LABS  

GREAT Mind MAPS

•  MTHFR Related Health Problems
•  MTHFR Treatment
•  BioFilms



Contact: Dr. M


Conversations with Dr. R, MD - WEBINAR


Price: FREE

When: TUESDAYS

4:45 - 6:15 PM (PST- Seattle Time)

Where: Wherever you are with a computer or tablet, a good internet connection, your favorite pet, and a good cup of herbal tea.

This live webinar is a 90 minute question and answer session on Lyme disease. It does not include a prepared presentation. You and the other participants create each show with your questions while Dr R, MD provides the answers.




REGISTRATION & INFORMATION:   Click Here

** Archived Webinars Available **
ILADS 2012 Conference - Boston

SLIDES and VIDEO

The ILADS 2012 Conference was re-streamed Dec 1rst & 2nd online. SLIDES are still available for viewing. To see videos of individual speakers or the whole conference contact ILADS for purchase. Links are below.

LINKS:

- Conference Speakers & their SLIDES

- ORDER Videos
  [Individual Speakers or Whole Conference]


 DISCONTINUED 
** NEW **   (Nov 2012)
Eastside LD Support Group Meeting


NOTE: This NEW meeting does NOT have a regularly scheduled Date, Time, and Location. Inquire with contacts for up-to-date information.



USUALLY MEETS:
2nd Saturday of the Month
2:30pm - 4:30pm



Contact:

WALymeFighters for more information.


 Meeting in Flux, contact group leaders 
Seattle LD Support Group Meeting


NOTE: This meeting does NOT have a regularly scheduled Date, Time, and Location. Inquire with contacts for up-to-date information.



USUALLY MEETS:

DATE: 2nd Saturday of the Month
TIME: Varies (Contact for times)
LOCATION(s):
Shoreline Public Library (KCLS)
or
Richmond Beach Public Library (KCLS)


Contact:

LINDA: [email protected]
  or
WALymeFighters for more information.


LOCAL LD PATIENT FEELS BETTER


A local patient has become better after using the SAMENTO/BANDEROL Protocol. The Protocol targets Borrelia and NOT other Co-Infections. To learn more see the link below.


TOWNSEND LETTER - JULY 2010

In Vitro Effectiveness of Samento and Banderol Herbal Extracts on the Different Morphological Forms of Borrelia Burgdorferi

by Akshita Datar, Navroop Kaur, Seema Patel, David F. Luecke, and Eva Sapi, PhD

[Lyme Disease ResearchGroup, University of New Haven ]

Click here to view article.

Dr K - NEW CLINIC & EVENT

NEW CLINIC OPENS > SEPTEMBER 2012

The Sophia Team of practitioners will be accepting NEW patients beginning September 4, 2012.

Dr. K will NOT be accepting NEW patients until January 2013.

To schedule an appointment, please email [email protected]


UPCOMING EVENT:
Dec 7- 8, 2012

Applied Psycho NeuroBiology
Redmond Marriott Town Center
Redmond, WA 98052
For more info: 908-899-1650

LINK
  •  Sophia Health Institute

 2012 SEATTLE LYME PICNIC 


SUNDAY - September 9, 2012
3:00 PM to Closing
Woodland Park, Seattle, WA
Shelter #5
Aurora Ave. N. and N. 59th St.

DIRECTIONS:

BUS:
Metro Bus #358 > Exit N 65th & Linden Ave N > Walk South past Lawn Bowling > SEE MAP Below

CAR: Interstate 5
Exit #169 > 50th St (West) > North on Green Lake Way > SEE MAP Below

CAR: Aurora Ave
Exit N 59th Street or Exit N 61st Street > SEE MAP Below


MAP click here


SPONSORED BY:
Dudes and Chicks with Ticks

ABC - 20/20
Episode #105: Medical Mysteries
Original Air Date: 5/18/2012

TEEN BLAMES BIZARRE ACCENT, VIOLENT SEIZURE ON LYME DISEASE

You’d never know it sitting across from 16-year-old Elaina that she suffers from a rare and debilitating case of Lyme disease. The spark-plug of a teen is bright, bubbly, and optimistic in the face of what she describes as a four-year nightmare.She believes she was bitten at age 12 by a tick on a soccer field in her New Hampshire town and consequently developed a co-infection of Lyme and another bacterial parasitic illness called Bartonella.

LINKS
  •  Episode Synopsis
  •  Watch Show   [38:56]

 DISCONTINUED 
BEYOND ILLNESS
- Health & Wellness Discussion Group -
Bellevue, WA

MEETS:
Weekly - Every Wednesday at 7:00 PM

LOCATION:
Friends, Philosophy, & Tea
13850 Bel-Red Rd
Bellevue, WA 98005
(Across from Applebees)
* Metro Bus Route #226 from Bellevue TC, Overlake TC, & Eastgate P & R. Get Off at 140th Ave NE
425-641-4364
[email protected]

CONTACT:
Professor Al Schaefer   206-286-6623

SEE AL SCHAEFER'S VIDEOS ONLINE:
•  Al Schaefer's video on Cancer
•  Interview with Al Schaefer, Cancer investigator

 >> In Memoriam << 
Al Schaefer passed away regrettably in 2014. He was a tireless pioneer, advocate, student, and so much more for cancer research and cancer patients. His absence will be felt by all those who knew him.

DR. PHIL SHOW
Episode #1804:   "DEADLY CONSEQUENCES"
Original Air Date - 4/13/12

EPISODE #1 > click here

EPISODE #2 > click here

EPISODE #3 > click here

Dr Phil Talks about why persistent Lyme Disease is being undiagnosed > click here


Running Rabbit Ranch
and Vineyard

281 Somerville Rd
Santa Rosa, Ca 95409


-- 3/25/2012 --
Inanna House will be a residence for debilitated chronically ill individuals, a place to receive supportive therapies in many modalities and to start treatment with IV antibiotics in a safe environment. It is a program designed to address all aspects of healing - Physical, Emotional, Mental, Spiritual, and Energetic. Inanna House will offer an oasis of Peace, Health, and Healing for those with Chronic Lyme Disease.

www.InannaHouse.org


DR. K - TELE-SEMINAR
Sponsored by: LDUC.org

Wed - March 21, 2012
5:00 PM (PST)

Topics:
Mold Protocols, Lyme Disease and Electro-Magnetic Radiation/Dirty Electricity


Contact www.LDUC.org or contact SeattleLymeBoard for information on how to connect to this tele-seminar.

"OUT OF THE WOODS"
Healing Lyme Disease - Body, Mind & Spirit
--  Pacific NW Book Tour  --    [Schedule]

OutOfTheWoodsBook.com
Katina (Kim) Makris, CCH, CIH
Read Katina's Blog here
Read the Seattle PI Book review here

WEDNESDAY, MARCH 28, 2012

6:00-7:30 PM

"Fragrance Free Event"

-- NO-COST Event --



FRIENDS, PHILOSOPHY, TEA SHOP
friendsphilosophyandtea.ning.com
13850 Bel-Red Rd, Bellevue, Wa 98005
(Across from Applebees)
425-641-4364

(Metro Bus Route #226 from Bellevue TC, Overlake TC, & Eastgate P & R.  Get Off at 140th Ave NE)

Join us for an evening with Katina Makris as she talks about her healing journey from  Lyme Disease  and her new book describing what she went through.


**  1rst Arrival's get FREE TEA  **



Note: Event is subject to change or cancelation. Please check website for latest details and event status.
 POLITICAL ACTION ALERT 

 HR 2557: 

To Provide For the Establishment of the Tick-Borne Diseases Advisory Committee

  • Contact your State Representatives and let them know you support HR 2557
  • Call the Legislative Hotline 1-800-562-6000
  • Give them your district    > Find your district


FOR MORE INFORMATION CLICK here
 DISCONTINUED: 

SOUTH SEATTLE LYME SUPPORT GROUP

3rd Tuesday of Each Month
Beacon Hill Neighborhood
** Facilitated by Local Doctor **

If you are interested in a South-End Lyme Support Group contact SeattleLymeBoard. If enough people are interested we can start the group again.

CONTACT:
Email
 DISCONTINUED:      Go to > TreatLyme.net instead

>>> NEW <<<     ONLINE LOCAL PATIENT FORUM

TickBytesOnline

Patient's Gathering is a discussion group for all those diagnosed with Lyme Disease, those who suspect they may have Lyme, those in remission, and their caretakers. This group is open to all who wish to exchange knowledge, to meet others experiencing similar things and to get well. Participation is open and free, although entry does require all participants to register with us. This ensures your privacy.


[THIS IS A FACILITATED FORUM]



PAST EVENTS

The Institute for Functional Medicine 2011 International Symposium
April 28-30
The Challenge of Emerging Infections in the 21st Century:
Terrain, Tolerance, and Susceptibility
PLACE: The Hyatt Regency Bellevue
CONTACT:
M-F, 8 am -5 pm PST
(800)228-0622 or (253)858-4724
Ask for Katie Stephens or Debbie Sanstad
E-mail: [email protected]
Program Schedule: click here
Upcoming Events: click here



A DEEP LOOK BEYOND LYME
May 6, 7, 8, 2011
New Insights, New Diagnostic Tools, New Treatments: New Health
Dr K MD, PhD
Redmond Marriott Town Center
7401 164th Avenue NE, Redmond WA 98052
(800) 228-9290
3 Day Intensive: (before April 6) $695.00 / reg. Fee: $695.00
Patient fee/office staff: (before April 6) $550.00 / reg. Fee: $595.00
Student discount with valid ID: $425.00
CME Credits Westbrook University: $45.00
TO REGISTER
call 908-899-1650
fax: 908-899-0961
email: [email protected]
Program Schedule: click here



LYME SUCCESS STORIES
May 7th, 2011
4pm - 6pm
PLACE:Dandelion Botanical Company
5424 Ballard Avenue
Seattle, Washington 98107
RSVP: [email protected]
SPONSORED BY: Dudes & Chicks with Tics



NUTRIONAL THERAPY IN MEDICAL PRACTICE
May 13 - 16, 2011
Doubletree Hotel, Seattle Airport
Seattle, Washington
Jonathan V. Wright, M.D.
and Alan R. Gaby, M.D.
To register



INJECTION TECHNIQUES and SKILLS
July 8-10, 2011
with Dr K MD, PhD
Redmond Marriott Town Center
7401 164th Avenue NE, Redmond WA 98052
3 Day Injection Workshop Cost :$ 895.00
early registration discount: $795.00
TO REGISTER
call 908-899-1650
fax: 908-899-0961
email: [email protected]



UNDER OUR SKIN: A Healthcare Nightmare (Movie)
AUGUST 21, 2011 2:00 PM
Airs on TV, KCTS Channel 9
Spread the Word, Tell your Friends, Neighbors, & Colleagues
Our Thanks to KCTS 9 For Airing this Tell-All Movie about the Plight of Lyme Disease Patients
To Advocate for Lyme Disease Awareness click here



2011 LYME PICNIC - Seattle WA
Sunday, September 11, 2011
Woodland Park, Seattle, WA
Shelter #5
Directions & Information
3:00 p.m. – Closing
RSVP: [email protected]
SPONSORED BY: Dudes & Chicks with Tics



FREE Live TeleConference with DR. K for LD patients
Tuesday - OCTOBER 4, 2011 at 5:00 PM PST
Contact local Support Groups or Message Boards for DIAL-IN # and ACCESS CODE
Click here for contacts
NOTE: 1rst 1000 callers only



APPLIED PSCYHONEUROBIOLOGY
with Dr. K, MD PhD
December 2-4, 2011
Hyatt Regency Bellevue
900 Bellevue Way, Bellevue WA 98004




LYME DISEASE

THE DISEASE

Lyme Disease is the illness caused after an individual is bitten by a tick infected with the Borrelia burgdorferi bacterium.



People who contract Lyme Disease more often than not are also Co-Infected with other bacterium the tick is carrying - Babesia, Erlichia (Anaplasmosis), and Bartonella.

SYMPTOMS

Lyme Disease symptoms include but are not limited to; The Bulls-Eye Rash, Fatigue (wired & tired), Chronic Exhaustion, Fever, Headache, Brain-Fog, Depression, Air-Hunger, and whole range of neurologic symptoms just to name a few.

CO-EXISTING ILLNESSES/ RELATED ILLNESSES

Lyme Disease can also co-exist with other illnesses such as Morgellons, Sogrens, Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS), Neurally Mediatated Hypotension (NMH/POTS), Multiple Chemical Sensitivity (MCS), Lyme Induced Autism (LIA) just to name a few.

DIAGNOSIS

Diagnosis is done through Lab Tests and clinical observation.

TREATMENT

Treatment for Lyme Disease vary considerably. Pharmaceuticals including Antibiotics, Anti-Parsitics, Anti-Bacterials, and Anti-Fungals are used. Strong Herbal regimens are also used. Detox regimens using strong chelators are used. Mindfulness meditation, Qi Gong, and Yoga are used. Vitamin infusion therapies are used. A wide range of Energy Medicine techniques are used. This can vary from NAET and BIOSET to Donna Eden's Energy Medicine Techniques. Pulsed Electromagnetic Field (PEMF) Therapies like RIFING can be used. Electro-Stimulation can be used. Diet modification can be used. Eastern Medicine like Acupuncture and Traditional Chinese Medicine (TCM) can be used.

OUTLOOK

The outlook is promising. Patients have lots of treatment options. However, treatment can take years and be grueling.

CONTROVERSY

Lyme Disease is steeped in controversy. The Infectious Disease Society of America (IDSA) and the International Lyme And Associated Diseases Society (ILADS) are directly opposed to one another in the way they recommend treatment for patients. The IDSA believes that a 30-day Antibiotic regimen to treat Lyme Disease should be sufficient whereas ILADS believes that long-term Antibiotic treatment is indicated. This has led to direct attack by the established medical community on Lyme Disease Practitioners in the form of revoking practitioners licenses and subsequently limiting patients choices.




CONNECTIONS

 Meeting in Flux, contact group leaders 

SEATTLE LYME DISEASE SUPPORT GROUP

(Usually) Meets the Second Saturday of Each Month

*** FRAGRANCE-FREE MEETING ***
** people are chemically sensitive, no strong fragrances or smoking please **

LOCATION(s):
Shoreline Library (KCLS)
  or
Richmond Beach Library (KCLS)

TIME: Varies

CONTACT:

LINDA: [email protected]
  or
WALymeFighters for information.


NOTE: Contact group leaders to make sure meeting is happening first.





 DISCONTINUED 

EASTSIDE LYME DISEASE SUPPORT GROUP

(Usually) Meets the Second Saturday of Each Month
2:30-4:30 PM

*** FRAGRANCE-FREE MEETING ***
** people are chemically sensitive, no strong fragrances or smoking please **

Contact:

WALymeFighters for information.







SNOHOMISH COUNTY LYME DISEASE SUPPORT GROUP


*** FRAGRANCE-FREE MEETING ***
** people are chemically sensitive, no strong fragrances or smoking please **

Contact:
Jenny
206-434-9870
[email protected]
Website


NOTE: Contact group leaders to make sure meeting is happening first.





 DISCONTINUED 

 South Seattle Lyme Disease Support Group

Meets the Third Tuesday of Each Month

2:00 PM

*** FRAGRANCE-FREE MEETING ***
** people are chemically sensitive, no strong fragrances or smoking please **

Beacon Hill Neighborhood
Facilitated by Local Doctor

CONTACT:

If you are interested in a South-End Lyme Support Group contact SeattleLymeBoard. If enough people are interested we can start the group again.

CONTACT:
Email




Washington Lyme Fighters

Washington Lyme Fighters (formerly WALDUC) is an online Yahoo! Groups message board for Lyme patients in Washington State and a political action group for Lyme causes.

For information on Bainbridge Island & Pierce/Kitsap County Lyme Disease Support Group meetings make inquiries here.

Click here to sign up.




Dudes and Chicks with Ticks

Social Gathering Network for Lyme Disease Patients in the Greater Seattle Area.

Click here to sign up.




OTHER LOCAL SUPPORT GROUPS

•  WA State Multiple Chemical Sensitivity Network

•  CFS FM Experimental
    (Latest CFS, Fibro, & Lyme Research)

•  Seattle CFS Support Group
    (Chronic Fatigue Syndrome Support)

•  Federal Way Fibromyalgia-CFS Support Group
    Contact: [email protected]




INTERNET SUPPORT GROUPS

LymeNet - Active Lyme Disease Discussion website
[See Flash Discussion for extensive Lyme Disease Discussion]

Lyme Strategies - Discussion Group about the Salt/C Protocol

LymeAid - Yahoo! Discussion Group




DOCTORS

Doctors treating Lyme Disease are NOT mentioned on most internet message boards because of the ongoing controversy in the medical community. Contact patients through Support Groups and ask for referrals or Google Lyme resources in your town or state.




PHARMACIES/ Rx's

NOTE: If you know someone who has a health practitioners license you can get wholesale prices on all supplements.


MEDICINE MAN PHARMACY
323 N 85th St, Seattle, WA 98103, (206)789-0800
(Greenwood Neighborhood)
Unbeatable prices on pharmaceutical grade Supplements


KEY PHARMACY
23422 Pacific Hwy South, Kent, WA 98032, (206)878-3900
(Kent West-Hill/ Des Moines Neighborhood)
Compounding Pharmacy for Nebulizing, Sublingual, & IV's
Key Website


CLARKS PHARMACY
15615 Bel-Red Rd, Bellevue, WA 98008, (425)885-1213
(Close to Microsoft Campus & Uwajimaya Market)
Compounding Rx specializing in Hi-end Supplements
Clarks Website


UNION PHARMACY
2302 S Union Ave, Ste C25, Tacoma, WA, (253) 752-1705
Compounding Rx in Tacoma
Union Ave Rx Website


PHARMACA PHARMACIES
(Redmond, Wallingford, W. Seattle, Madison Park)
Regular & Compounding Pharmacy & Supplements
Pharmaca Website


BASTYR DISPENSARY
3670 Stone Way N, Seattle, WA 98103
Regular: (206)834-4114, Chinese Herb: (206)834-4169
Bastyr Dispensaries Website




TESTS


 GENETIC MUTATION TESTING 


SPECIALIZED LABS


GENETIC TESTING

23andMe.org - $99 TEST - Approx 1 Million Genes Tested


HolisticHeal.com - $495, 30 Genes, Associated with KnowYourGenetics.com


GENETIC TESTING RESULTS

KnowYourGenetics.com - FREE RESULTS, 30 Genes
  - Sample Report

GeneticGenie.org - $99 RESULTS now FREE - 25 Genes
  - Sample Report

Sterling's APP - $20, Approx 300 Genes
  - Sample Report






STANDARD LABS

MUTATIONS TESTED FOR;   C677T & A1298C ONLY


•  Labcorp - MTHFR (C677T) Mutation Analysis

•  Quest Diagnostics - (MTHFR) DNA Mutation Analysis




 GENETIC MUTATION TESTING - (Serum Test) 


•  Vitamin Diagnostics Inc - Methylation Panel Test
    South Amboy, NJ, (732) 721-1234
    (Doctors Prescription Needed)

•  SeekingHealth.com - Methylation Panel Test from Vitamin Diagnostics
    ** NO Prescription Needed **

SERUM LEVELS Tested FOR;
Note: This Tests for Serum Levels of Specific Biochemicals Affected by Gene Mutations (SNP's)

Glutathione (oxidized) -   ref. range: 0.16 – 0.50
Glutathione (reduced) -   ref. range: 3.8 – 5.5
S-Adenosylmethionine (RBC) -   ref. range: 221 – 256
S-Adenosylhomocysteine (RBC) -   ref. range: 38.0 – 49.0
5-CH3-THF -   ref. range: 8.4 – 72.6
10-Formyl-THF -   ref. range: 1.5 – 8.2
5-Formyl-THF -   ref. range: 1.20 – 11.70
THF -   ref. range: 0.60 – 6.80
Folic Acid -   ref. range: 8.9 – 24.6
Folinic Acid (WC) -   ref. range: 9.0 – 35.5
Folic Acid, active (RBC) ref. range: 400 – 1500
Adenosine -   ref. range: 16.8 – 21.4




 LYME DISEASE and CO-INFECTIONS TESTING 


  > LYME DISEASE TEST FOR;   Borrelia

  > CO-INFECTIONS TESTS FOR:   Babesia, Bartonella, Erlichia     (Anaplasmosis)



SPECIALIZED LABS

•  Advanced-LAB - Borrelia Blood Culture Test

•  IGENEX - Western Blot test for Borrelia & Co-infections.

•  Fry Labs - Blood Smear tests for Borrelia & Co-infections & Others



STANDARD LABS

•  Labcorp - Lyme Disease Test Panel - (17 tests)

•  Quest Diagnostics - Lyme Disease Western Blot Test




 COMPLEMENTARY TESTS 


•  LabCorp - HNK1 (CD57) Test

•  Esoterix - (formerly HEMEX) Blood coagulation Tests

•  Fibro & Fatigue Centers - Exhaustive Panels (Bellevue, WA)

•  Diagnostechs - Adrenal Saliva Test (Kent, WA)

•  Genova Diagnostics - Comprehensive Diagnostic Stool Analysis
    (CDSA)

•  Doctors Data - CDSA, Hair Analysis, Toxicity

•  USBiotek - Food Allergy Panels

•  Meridian Valley Lab - Food Allergy, Adrenal, CDSA, Chemistry,     Hormone (Kent, WA)







TREATMENTS


The following information is for reference only. This information is not intended to diagnose, treat or cure any medical condition.Please consult a licensed health care professional before using any of the following information.


MEDICAL TREATMENTS


ANTI-BIOTIC PROTOCOLS

A wide varitey of antibiotics are used in the treatment of Lyme Disease. Antibiotics are used for sustained periods (months, years) and in shorter periods (weeks) of time depending on what a doctor wants to treat. Classes of antibiotics include Tetracyclines, Mycobacterials, Quinolones, Macrolides, Azole Drugs, Cephalosporins, Penicillins just to name few. Drugs are targeted towards the specific infectious organism (Borrelia, Bartonella, Babesia, Anasplasmosis) and also the specific life-cycle stage [Spirochete, Cyst, or Cell Wall Deficient Forms].



ANTI-/PARASITIC/FUNGAL/BACTERIAL PROTOCOLS




ANTI-MALARIAL PROTOCOLS



HERBAL PROTOCOLS



MARSHAL PROTOCOL




OTHER TREATMENTS


DETOX/CHELATION PROTOCOLS



SALT/C PROTOCOL



ENERGY MEDICINE PROTOCOLS



PULSED ELECTROMAGNETIC FIELD (PEMF) PROTOCOLS






RESOURCES


LYME DISEASE WEBSITES

BetterHealthGuy - Lyme Disease Website with Extensive Information

LymeNet - Lyme Disease information & resources
[See Flash Discussion for extensive Lyme Disease Discussion]

Lymeinfo.net - site provides details about Lyme disease symptoms, diagnosis, treatment, and prevention. Advocacy info and peer-reviewed medical literature are also available




LYME DISEASE ORGANIZATIONS

ILADS - International Lyme and Associated Diseases Society

LymeDisease.org - California Lyme Disease Association




CHRONIC FATIGUE SYNDROME WEBSITES

Phoenix Rising - Cort Johnson's Website with Extensive CFS Information

ProHealth - Website addresssing CFS, Fibro, Lyme Disease and other illnesses

EndFatigue - Jacob Teitelbaum's CFS website




FIBROMYALGIA WEBSITES

National Fibromyalgia Association - Fibro Resource Website




COMMUNITY SUPPORT RESOURCES

CHARITY CARE - is FREE or Low-Income HEALTHCARE available at local HOSPITALS to any low-income person who qualifies. Hospitals will not advertise this but it is your right if you DO NOT have insurance and need medical help. Its the law and your right.


CRISIS CLINIC:

•  24-Hour Crisis Line: (206.461.3222)
    Toll Free: 866.4CRISIS (866.427.4747)
•  Emergency Shelters - Families w/Children, Couples, Domestic Violence, Day Shelter, TEENS,
•  Mens Emergency Services - Food, Clothing, Shelter
•  Womens Emergency Services - Food, Clothing, Shelter
•  South King County Emergency Services - Food, Clothing, Shelter
•  East and North King County Emergency Services - Food, Clothing, Shelter
•  Medical Services in Seattle - Medical, Dental, Vision, Needle Exchange
•  211 Transitional Housing/Shelter - Emergency Housing & Shelter


COMMUNITY INFORMATION LINE:

Foodbanks, Housing, Shelter, Medical, and more ...
•  Dial 211 - for community information in KING COUNTY
•  King County Community Information Online
•  Pierce County 211 - Call 800-572-4357
•  Snohomish County 211 - Call 800-223-8145


CancerLifeline - Free Supportive Classes for People with Chronic Health Problems.   [Dont have to have Cancer]


NAMI Seattle & Eastside - National Alliance on Mental Illness
•  Mental Health Resources


HOUSING SEARCH NorthWest - Find Housing in Seattle




LOW-INCOME, AGING and DISABILITY RESOURCES


DSHS - WA State Dept. of Social & Health Services

•  Disability Lifeline - Foodstamps and Medicaid
    [formerly GAU & GAX]- general assistance unemployable
•  TANF - Temporary Assistance to Needy Families
•  Food Stamps - food assistance
•  Medicaid - medical assistance
•  COPES - Personal Homecare Services
•  WTAP - Washington Telephone Assistance Program


LOW INCOME HOUSING:
• Seattle Housing Authority
• King County Housing Authority
• Low Income Housing Institute
• Plymouth Housing Group
• Housing Resources Group
• Capitol Hill Housing Improvement Program



Community Health Centers - Local Community Health Clinics


SOLID GROUND - [Wallingford Neighborhood]

•  Aging & Disability Services
•  DSHS Legal Services
•  Community Voicemail - Free Voicemail


CAMP - Central Area Motivation Project
•  Energy Assistance
•  Housing Assistance
•  Food Bank


Alliance of People with Disabilities - Independant Living Resources


Disability Rights Washington - Know your Rights


King County Aging & Disability Services - Senior Services


LOW COST INTERNET:
• COMCAST - Internet Essentials
• Century Link - Internet Basics




FREE STUFF

FREE Cellphones -  [for foodstamp & medicaid participants]
•  Virgin Mobile
•  Trac Phone


FREE Internet ACCESS:

- NoCharge.com - must have a telephone line and Fax Modem Card installed on your PC or Laptop. Click here for dialup numbers. Fax/Modem cards can be purchased online, at your local computer store, or for $0.99 at RE-PC in one of their scrap bins. Software drivers for scrapped Fax/Modem Cards can be located and downloaded off the internet by entering the Part #, which is located on the board and the word "driver" afterwards.

- Seattle Public Library or King County Library System have internet-ready available computers available to the public for residents with library cards.

- WI-FI - You can access the internet with a Wireless Network Interface Card that you install or connect to your computer. You have to be close to an Open (non password-protected) WI-FI HotSpot. Free HotSpots are available in coffee shops, libraries, and with friendly neighbors.




LEGAL

SOLID GROUND - DSHS Legal Services. Contact their legal department if you are having problems with DSHS.


Schroeter, Goldmark & Bender - Social Security/Disability Attorneys respresenting patients with Chronic Illnesses


Krafchick Law Firm - Social Security/Disability Attorney respresenting patients with Chronic Illnesses   Note: Fibro-Friendly


NW Justice Project - Online Legal Self-Help & Tele. Assistance
Telephone Assistance:
• Hours (weekdays 9:30 am -12:30 pm, Tues 3:30-6:15 pm)
• 1-888-387-7111 (over 60 yrs old)
• 206-464-1519 (low income, non-criminal, in King County)
• 1-888-201-1014 (low income, non-criminal, outside King County)


Tenants Union - Tenant Legal Assitance: Tele. & In-Person
• 206-723-0500 (Tenant Rights Hotline)


Housing Justice Project - Free Housing Legal Assistance


Washington Law Help - Online Self-Help Legal Information


King County Neighborhood Legal Clinics - Free


Unemployment Law Project Provides free legal assistance & information to people who have been denied unemployment benefits.




PERIODICALS

Lyme Times - Periodical issued several times per year by CALDA

Townsend Newsletter - Comprehensive Holistic Health Articles Periodical. Subscribe or purchase at local health outlets.



BOOKS

[The following are BOOKS suggested by Patients and Doctors]
Note: some of these books are avaiable at our local libraries

  • Everything You Need to Know About Lyme Disease
    Vanderhoof & Forschner
  • Coping with Lyme Disease: A Practical Guide to
    Dealing with Diagnosis and Treatment
  • Denise Lang
  • The Lyme Disease Solution
  • Kenneth B. Singleton M.D.
  • Healing Lyme: Natural Healing And Prevention of
    Lyme Borreliosis And Its Coinfections
  • Stephen Harrod Buhner
  • Healing Lyme Disease Naturally: History, Analysis, and Treatments
  • Wolf D. Storl
  • When Antibiotics Fail: Lyme Disease and Rife Machines, with Critical Evaluation of Leading Alternative Therapies
  • Bryan Rosner
  • Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies
  • Connie Strasheim
  • The Lyme Diet
  • Nicola McFadzean, ND
  • Recipes for Repair: A Lyme Disease Cookbook
  • Gail Piazza, Laura Piazza

TECHNICAL BOOKS

  • Explaining Unexplained Illnesses
    Martin Pall, Phd





PRODUCTS


BIOPURE - Local Distributor of Lyme Specific products

TREAT LYME - Local Distributor of Lyme Specific products

PHARMAX - Local Distributor of Pharmaceutical Grade Probiotics





ADVOCACY
 POLITICAL ACTION ALERT 

 HR 2557: 

To Provide For the Establishment of the Tick-Borne Diseases Advisory Committee

  • Contact your State Representatives and let them know you support HR 2557
  • Call the Legislative Hotline 1-800-562-6000
  • Give them your district    > Find your district


FOR MORE INFORMATION CLICK here

PLACE HOLDER
UNDER OUR SKIN  -  2008 Lyme Disease Documentary
6 'Best Documentary' Titles,  Top 15 Oscar Nomination

Exposes the hidden epidemic of Lyme disease and reveals how our corrupt health care system is failing to address one of the most serious illnesses of our time.


What You Can Do ? -  Spread the Word ! Tell your family, friends, neighbors, colleagues, and community at large. Buy the DVD from the Under Our Skin Website and show it to anyone who will watch or listen. Movie excerpts are also available on YouTube.

PLACE HOLDER
PLUM ISLAND - Aired: 10/15/2010
TruTV:  Conspiracy Theory  (TV Series)

Jesse Ventura storms Congress to find out if the government is conducting dangerous experiments at the Plum Island Animal Research Center off the coast of Long Island. The center, which began as a bio-warfare lab run by former Nazi scientists, has been blamed for spreading diseases and viruses throughout the mainland, including African swine flu and Lyme disease. Some suspect the mysterious Montauk Monster emanated from the facility. TV-14

What You Can Do ? -  Watch the TV SHOW here



PLACE HOLDER
THE TOMATO EFFECT  -  Environmental Illness Documentary
Premiered in Seattle May 7, 2006 at Bastyr university.

Faun Kime's documentary 'The Tomato Effect' is a startling and rare look at a battle raging in medicine. Director Faun Kime chronicles ten doctors in the San Francisco bay area who lose their licenses while practicing Environmental Medicine and diagnosing chemical illness. Faun's father, Zane R. Kime M.D., was one of these physicians who responded with a spectacular legal battle that progressed to the appellate court and was about to set precedent. But when he ends up dead after a mysterious mountain climbing accident, Faun picks up a camera and investigates. She uncovers not only shocking secrets about her father's death, but the disturbing truth about the state of health care". The Tomato Effect documentary is sadly no longer available commercially. Its promotional web site closed long ago and all contact email addresses were shut down with it. In response to numerous requests from MCS sufferers over the last few years, MCS-International.Org finally decided, in the public interest generally, and for the benefit of the chemically injured everywhere,to put this excellent documentary film and the important environmental issues it raises, into the public domain - under a banner of fair use.


[The Movie Highlights in no uncertain terms what happens to doctors advocating for their patients who arent in lock-step with the main-stream medical community]

What You Can Do ? -  Support organizations that promote natural health patient choices

Organizations that Support Natural Health Choices:

•  Alliance for Natural Health

•  Save My Medicine




PLACE HOLDER
I REMEMBER ME (2000)
Chronic Fatigue Syndrome (CFS) Documentary
WINNER - Best Documentary - Denver Film Festival 2000

Director Kim Snynder chronicles outbreaks of a mysterious disease in the United States that only later comes to be known as "Chronic Fatigue Syndrome or CFS." "I Remember Me" is a story about patients afflicted with CFS and their day-to-day struggles of living with an Invisible Illness that the Centers for Disease Control (CDC) has barely come to terms with. Notable interviews are with Soccer Gold Medalist Michelle Akers and Film Director Blake Edwards who both have been afflicted with the illness. Interwoven into the movie is the story of Stephen Paganetti. Paganetti a Connecticut teenager ill since the 10th grade rides an ambulance to his high school graduation, which he attends lying flat on a gurney. His participation becomes, in effect, a celebration of the human spirit and will to live.


What You Can Do ? -  Support organizations that are working for a Cure for CFS

Organizations that are working for a Cure of CFS

•  CFIDS Association of America



What You Can Do ? -  Help raise awareness of CFS

Raise Awareness of CFS every Year on May 12th

•  May 12th - International ME/CFS & FM Awareness Day









Please consult a licensed health care professional before using
any of the following information. This information is not
intended to diagnose, treat or cure any medical condition.

© SeattleLymeBoard 2010-2015





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