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Summary of BOARD OF DIRECTORS CONFERENCE CALL May 25, 2003 | |
� Fund-raising proposal A proposal was put forward to raise funds through the recycling of used cartridges from ink-jet printers. The used cartridges would be collected, on a nation-wide basis, and purchased by a company that is in the business of refilling the used cartridges for re-sale. Further details of this proposal will be explained at the Annual General Meeting in September.
� Awareness campaign
� Press release
� Annual General Meeting |
L-R (back row) Grant Dustin -Secretary/Treasurer, Marion Pacy -Director, Yvon Leveille -Director L-R (seated)Irene Goodale -Director, Bob Buzza -President, Mary Beth Clark -Vice President missing Helen Stys -Director (Picture from Sept, 01)
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Bob Buzza - President Bob retired in 1989 after 38 years as a public school teacher, counselor, and principal - also having served overseas in a leadership capacity in Ghana and South Africa as an education organization and development facilitator - and then served for 16 years as Executive Director of the BC Teachers Federation. Bob has served on numerous Boards in the public and private sector, including the Scleroderma Association of BC for 12 Years as VP or Treasurer. Bob played a significant role with respect to the incorporation under the Society Act of BC. He also worked in fund raising, negotiating and working with other groups, and producing and editing four scleroderma tapes which have been widely used on public service channels. And in establishing a scleroderma clinic and patient data base at St. Paul's Hospital in Vancouver and working with researchers at UBC on a project that resulted in publication of findings in the European Journal of Immunology. Bob and his high school sweetheart, Joy, have been married for 47 years, and have three daughters and seven grandchildren.
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Mary Beth Clark - Vice-president Mary Beth lives in Halifax, Nova Scotia, and was the founder and leader of the Atlantic Scleroderma Support Group from 1992 -1996. She planned, organized and conducted monthly meetings with a focus on patient education and advocacy, and on social and emotional support. Mary Beth regularly visited hospitlized individuals and provided one-on-one counselling. She liasoned with professionals in the Dalhousie University Schools of Medicine, Dentistry, Dental Hygiene and Physiotherapy and was involved in a variety of scleroderma related projects with these groups. Mary Beth has been active on a number of other boards and committees in the Halifax area over the years. She served on the Canadian Cancer Society board for about five years, two years as the Chairperson of the Education Committee, and two years as a regular education committee volunteer. Mary Beth has also worked as a volunteer counsellor and group leader in the patient emotional support group, "Living with Cancer". She has done volunteer work with the Arthritis Society, Nova Scotia Liver Foundation and the Multiple Sclerosis Society. Mary Beth has an interest in environmental illness as related to scleroderma and scleroderma-like diseases. She promotes stress management, patient emotional support, comfort therapy, therapeutic recreation, wellness and a healthy lifestyle as powerful healing aids for people living with a chronic illness. Mary Beth possesses a B. Recreation degree, a B.SC. Foods and Nutrition degree, a Masters of Education degree and a Post Graduate Certificate in Family Therapy.
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Grant Dustin - Secretary/Treasurer Grant is a high school Social Studies teacher, retired from full-time teaching, but still doing some part-time teaching in the adult education program in Calgary. He was been involved with the scleroderma group in Calgary during the first two years, serving as one of the Directors of the Board of the Scleroderma Society of Canada. In the past, Grant has served on the executive of the Social Studies Council of the Alberta Teacher's Association and has been involved in the organization of their annual conference on several occasions. He and his wife Maie, have two sons.
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Irene Goodale - Director Irene is the mother of three young men and lives in the small town of Caledonia, Ontario with her husband, Myles. She was working in the business office of the Hamilton Spectator newspaper when she was diagnosed with P.S.Scleroderma in 1991. By 1994 she founded the Hamilton Scleroderma support group, primarily to meet other scleroderma patients. The following year she joined the Scleroderma Society of Ontario (SSO) board of directors. Irene has chaired a major conference for the SSO as well as 3 fund raising events. She has prepared several of the Society's newsletters and has represented the SSO on the speaker's roster as well as public awareness director. Her present title is Past-President of the Scleroderma Society of Ontario, as well as Hamilton support group leader and public awareness director Irene's passion is towards public awareness. Scleroderma patients need not feel like they are all alone.
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Yvon Leveille -Director
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Marion Pacy -Director
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Helen Stys - Director
Helen was diagnosed with scleroderma in 1993, and shortly after, because of health reasons, retired from her career as an accounting manager. She joined the Board of Directors of the Scleroderma Society of Ontario in 1996. Helen has been an active member of the Board since that time. In 1997, she created and formatted a web site on the Internet for the Scleroderma Society of Ontario and has manned it and updated it since its inception. She has a local support group in Brantford, and is on the speaker's roster for the Scleroderma Society of Ontario. Besides the Provincial conferences, Helen has attended two international conferences in the United States. She now represents the Scleroderma Society of Ontario as president.
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Summary of BOARD OF DIRECTORS CONFERENCE CALL Sunday, October 13, 2002 | |
Participating: Bob Buzza, Mary Beth Clark, Grant Dustin, Irene Goodale, Lori Jacobs The minutes of the September 21, 2002 meeting were adopted as corrected. INTERIM BUDGET � Discussion of the interim budget recognized that our basic administrative expenses will be met by revenue from fees paid by our Members, but that additional income will be required to cover the costs of the AGM and anticipated expansion of our publicity and communication programs. Bob noted that Joan Kelly has a list of potential supporters to consider for sponsoring the AGM. It was also noted that the presentation of our business plan will facilitate our contact with potential sponsors. BUSINESS PLAN � Grant will prepare the business plan, and discuss it with Yvon , to have it ready for Board consideration prior to the December 1st conference call meeting. As part of the business plan preparation, Grant would like to identify the target audience for the plan and the anticipated purposes for funds being solicited. He asks Board members to offer suggestions in this regard, that is, to respond to these questions.
�To whom will we possibly be presenting the business plan in our attempt to raise funds?�
�For what purposes or projects are we seeking these funds?� COMMUNICATIONS � Lori has been in touch with Marion Pacy regarding communication objectives. Lori stated that, in her view, one of our objectives should be to develop materials that would be helpful at the time of a death related to scleroderma, for example, �in memoriam� cards or pamphlet material for families. Both Bob and Irene pointed out that they have materials prepared and used for this purpose, in BC and in Ontario; they will send samples to Lori. It was also noted that funeral homes have generic cards that can be used for this purpose. We welcome sample materials from others as well; please send them to Lori Jacobs or Mare Pacy. DONATIONS can comprise a significant portion of the revenue for some Members; discussion on this matter needs to consider the role of both the national organization (SSC) and the Members. Bob reminded us that the SCLERODERMA FOUNDATION HAS INFORMATION MATERIALS available, such as a package directed toward physicians, that we can consider when developing our own material. He suggested that when we have our material developed, the SSC could print bulk quantities, from which Members could purchase copies for their own distribution. Mare Pacy is in the process of completing the OCTOBER issue of the NEWSLETTER.
A REVIEW OF THE WEBSITE is one of our objectives and Bob provided an outline for this purpose. He suggested the following headings for consideration: Regarding the VIDEOTAPE OF DR. POPE�S PRESENTATION, Lori commented that ....some editing would be done, to include the script from the information that was projected on the screen. Once the editing is completed, Bob offered to review it and to have the required additional copies made (As per the Board decision of September 21st, 16 copies will be provided by Tyson, one for each Member and three for the SSC.). Bob will also contact the people who signed the list requesting video and audio tapes.
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September 21, 2002 ANNUAL GENERAL MEETING in Chateauguay, Quebec. | |||||
President Bob Buzza welcomed everyone to the meeting and made introductions and comments of appreciation to our hosts, Lori Jacobs, AGM Coordinator and Chief Keith Myiow, of the Mohawk Council of Khanawake, and to our special guests, Dr. Jean Luc Senecal of Notre Dame hospital in Montreal, and Donna Kholi, President and CEO of the Scleroderma Foundation.
All Members except Saskatchewan were represented. Next AGM will take place September 20, 2003 in Winnipeg, with Marion Pacy serving as Coordinator.
In recognition of the Scleroderma Foundation and to acknowledge our appreciation for their support, it was proposed that we make that organization an Affiliate Member of our Society, without fee.
MOTION: �That Article 5.1(b) iv of the Consitution be deleted, and that the words �or by the Board� be added to Article 6.1(b).�
It was recommended that the annual fee remain at $3.00; it was also recommended that, for accounting purposes, we ask that these fees be paid by April 30.
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